I was diagnosed with spinal muscular atrophy (SMA), a rare neuromuscular disease, at a young age, and was given nine years to live. Now, at 26 years old, I’ve surpassed all expectations, and have dedicated my life to the hard and holy work of disability justice.
I’m a storyteller at heart, with a love of the horrific and whimsical. Over the years, I’ve written everything from poetry to personal essays; my work has been published in a variety of literary magazines and anthologies.
I have degrees in psychology and community care and am always thinking about the intersection of disability and mental health. I freelance as an editor and sensitivity reader while working part-time as a disability advocate.
I live in snowy Minnesota with my parents and the cat of my heart, Rey. If I’m not writing, I’m probably analyzing media, playing games, or indulging my imagination through ritual and art. 🌈🦋💫