About me

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I was diagnosed with spinal muscular atrophy (SMA), a rare neuromuscular disease, at a young age, and was given nine years to live. Now, at 28 years old, I have surpassed all expectations, and have dedicated my life to the pursuit of disability justice.

Iโ€™m a storyteller at heart, with a love of the horrific and whimsical. Over the years, Iโ€™ve written everything from poetry to personal essays; my work has been published in a variety of literary magazines and anthologies.

I have degrees in psychology and community care and am always thinking about the intersection of disability and mental health. I live in snowy Minnesota with the cat of my heart, Rey. If Iโ€™m not writing, Iโ€™m probably indulging my imagination through ritual and art.

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